Terrelyn's Blog

Just a Reminder

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I have had this since I was 3 weeks old. I am blessed  to know I am not the only one who shares the struggles of this very challenging condition. Advocacy is important  for us who have to deal with it,as well as our families who see us go through this. It also has been a blessing to see the mindset of people  starting to change ,in comparison to what it was when I was younger. I never thought I would  live to see this day where I can speak for those who cannot.

Ten revisions  may seem a lot to you, but I am not the “hero” here.  The  creator of our shunt system,is a “hero”.The surgeons, who didn’t give up ,are the “heroes”. The nurses, and the emergency staff, the EMS transports ,who see us in our worst, are the “heroes”. Those who  went to Washington to get this condition  finally recognized as  it was supposed to be,are the “heroes”. The parents who stay beside their children in their  illnesses and health  ,are the “heroes”. The siblings who go to bat ,and protect their brother or sister ,from being bullied by ignorant people ,as mine did for me, are the “heroes”.Those who have had more revisions  than I have ,and still manage to have a wonderful outlook ,and quality of life ,are the “heroes”. Those who participate in HydroWalks are the “heroes”. Those who endure every day, are the “heroes”. These are the ones I celebrate, as heroes.

 

 

 

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This entry was published on September 7, 2016 at 9:43 am and is filed under hydrocephalus, Life. Bookmark the permalink. Follow any comments here with the RSS feed for this post.

One thought on “Just a Reminder

  1. I am sorry that you have been through so much in life, born with hydrocephalus. sorry I spelled it wrong, sometimes I think god picks certain people to allow things to happen because he knows that they are strong enough to handle it. but at the time its happening to us we don’t realize how strong we are really.

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